PT & OT Treatment for Ehlers Danlos Syndrome – Hypermobile Type

Posted by Lori Algar OTD, OTR/L, CHT on Thu, Aug 06,2020 @ 01:40 PM

What is Ehlers Danlos Syndrome 

Ehlers Danlos Syndrome (EDS) is an inherited condition of a collection of connective tissue disorders, of which the hypermobile type is the most common. Individuals with Hypermobile EDS classically present with hyperextensible joints and skin. 

Research statistics on EDS suggest the prevalence of the disorder is 1 in 2,500 to 1 in 5,000, but due to difficulty recognizing and accurately diagnosing the Hypermobility Type, the incidence is suspected to be much greater.

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Treating Ehlers-Danlos Syndrome (EDS) Hypermobility

Posted by Jennifer Curtis on Fri, May 08,2015 @ 10:33 AM

Problem

Hypermobility, hypereleasticity, fragile skin, and poor healing are the hallmark of a rare group of genetic disorders collectively called Ehlers-Danlos Syndrome (EDS). There are six major forms of EDS, all of which affect the joints and skin. The most common form of EDS is the hypermobility type (previously called Type III). These patients may have been incorrectly deemed “double-jointed;” however, the condition is far from benign as patients are plagued by excessive joint mobility, instability and dislocation, and chronic pain.

To date, there is no specific gene test for the hypermobility type (as there is for type 1 or Classical EDS). There is no cure for EDS but it can be managed with lifestyle changes, physical and occupational therapy, NSAIDs, and splinting.

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